National Cancer Institute
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About GEM > FAQ
Frequently Asked Questions (FAQs)




You do not need to register to browse and search measures, constructs, and datasets. However, you will need to register if you want to add or comment on measures and constructs.
If you are already a registered user:
  • Click the “Login” button on the upper left hand side of the page. When prompted, enter your user name and password, and click “Login.”
If you are new to the site:
  • Click the “Register” button on the upper left hand side of the page.
  • Enter the requested information (user name, password, email address, first and last name).
  • Click “Create User.”
  • Click the “Login” button on the upper left hand side of the page.
  • Click the “Forgot Password” button.
  • Enter your user name, click “Send Password,” and your password will be sent to the email address on file.
  • Click the “Login” button on the upper left hand side of the page.
  • Go to the My GEM tab.
  • Click on “Change Password” and fill in the requested information.
  • Click the “Login” button on the upper left hand side of the page.
  • Go to the My GEM tab.
  • Click on “Update Profile.”
  • Click the “Edit” button to enter your information.
  • Click the “Update” button when you are finished.

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  • Go to the Constructs tab.
  • Click the “Add New Construct” button underneath the Constructs tab.
  • Fill in as much of the information as you have. NOTE: The only information required to submit a construct is “Name of Construct” and “Definition of Construct.”
  • Name of Construct – The title by which the construct is known.
  • Definition of Construct – Meaning of the construct.
  • Theoretical Foundation – The social, psychological, or behavioral theory underlying the construct.
  • Synonyms for Construct – Other terms sometimes used to represent the same construct (e.g., “perceived susceptibility” and “perceived threat”).
  • Similar Constructs – Related terms that represent over-lapping concepts. They overlap to such an extent that rarely would both be measured (e.g., “perceived benefits” and “pros of change”).
  • Associated Constructs – Terms that represent different concepts that are hypothesized (or known) to relate in useful ways and are therefore often measured together (e.g., “perceived benefits” and “perceived barriers”).
  • References – Selected publications concerning or using the construct.
  • Keywords – Words or phrases that will assist users when they search for the construct.
  • Click “Review and Submit” to review the information you entered or “Back” to make changes to the information you entered.
  • Click “Submit” to make the construct available on the website.
  • No. If you would like to finish entering the construct information at a later time, click “Save and Finish Later”. The only information required to save a construct is “Name of Construct” and “Definition of Construct.”
  • When you return to the site:
    • Search or browse for the construct in the Constructs tab.
    • Click the construct name.
    • Click “Edit” to finish entering information.
  • NOTE: construct will not be visible to other users, or appear on the list of constructs, until you “Submit” it.
  • Any registered user of the website has the ability to edit all publicly available constructs in the database.
  • After logging in, go to the Constructs tab and click on name of the construct you would like to edit.
  • Click the “Edit” button near the top right of the page.
  • Click “Review and Submit” to review your edits.
  • Click “Submit” to update the construct with your information or “Back” to make changes to the information you entered.
  • Go to the Constructs tab.
  • Click on the name of the construct you would like to comment on.
  • Click the “Add Comment” button found at the bottom right of the page.
  • Enter a title for your comment in the first text box.
  • Enter your comment into the second text box.
  • Click “Save” to submit your comment.
  • After logging in, go to the Constructs tab and click on the name of the construct you would like to review.
  • Click the “History” button near the top right of the page to view the history of the changes that have been made by various users.
  • Go to the “Action” column in the “Construct History” table and click the “View” link to view previous versions of the construct.

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To add a measure, you will need to navigate through multiple pages. The only required information to save a measure as a draft is Measure Name, Construct, and Lead Author.
  • Go to the Measures tab
  • Click the “Add New Measure” button underneath the Measures tab.
  • Click the “Save and Continue” button at the bottom of each page, and use the tabs within the “Measures” box to go to the next page.
General Information
  • Measure name – The title by which the measure is known.
  • Measure type – The method by which the data are obtained.
  • Construct – Concepts developed or adopted for use in a particular theory. (NOTE: Browse the list of constructs to see if the construct is already in the database. You can click on the name of any construct to view its definition and theoretical framework. If the construct is not there, click “Add construct.” Upon submitting the construct, the construct will appear in the list. Click on the name of the construct to select it.)
  • Primary Content Area – The field of research for which this measure is most theoretically relevant.
  • Secondary Content Area – A field of research for which this measure is also theoretically relevant.
  • Brief description – A brief description of the measure and its purpose.
  • Keywords – Words or phrases that will assist with the search for the construct
  • Target population – Types of subject(s) for which measure was intended
  • Mode of administration – A specific description of the administration of a measure.

Author Information
  • Information about the author including Lead Author(s) Name or Organization, Degree, Affiliation, Address, and Contact Information.

History
  • Version Date – The year that the measure was released for use.
  • Measurement Development – Changes to original measure; different iterations.

Measurement Characteristics
  • Number of Items – Number of items in the measure.
  • Response Category Format – The type of response options available for responding to any item.
  • Reliability – The ability of the measure to assess a quality or property consistently.
  • Validity – The degree to which the measure accurately assesses or reflects what it purports to measure.
  • Psychometric Properties – The psychometric aspects of the measure including validity and reliability.
  • Scoring Method – Specification of how items are combined to create a final score or set of scores.
  • Data Sharing Capability – The ability of, or access to, data based on the use of the measure.
  • Public Availability – The availability of the measure in the public domain.
  • Language – The language in which the measure is written.

References & Publications
  • Reference – Selected publications concerning or using the measure.

Upload Measure
  • If you would like to provide an electronic copy of your measure, click “Browse” to locate your document and “Upload” to upload it to the website. (NOTE: Only PDF files can be accepted).
  • Click “Review and Submit” to review the information you entered.
  • Select the appropriate status.
  • Click “Submit” to make the measure publicly available or “Back” to make changes to the information you entered.
  • No. If you would like to finish entering the measure information at a later time, click “Save.” The only information required to save a measure is Measure Name, Construct, and Lead Author.
  • When you return to the site:
  • Search or browse for the measure in the Measures tab.
  • Click the measure name.
  • Click “Edit” to finish entering information.
  • NOTE: The measure will not be visible to others, or appear on the list of measures, until the measure is made publicly available.
  • Any registered user of the website has the ability to edit all publicly available measures in the database.
  • Go to the Measures tab and click on name of the measure you would like to edit.
  • Click the “Edit” button near the top right of the page.
  • Click “Review and Submit” to review your edits.
  • Click “Submit” to update the measure with your information, or “Back” to make changes to the information you entered.
Measures are only available for rating if they are labeled as ”Ready for Rating” in the Measures table.
  • Go to the Measures tab.
  • Click on the measure name.
  • Scroll to the bottom of the page and click the “Add Comment” button to rate.
  • If you clicked the “Add Comment” button, use the radio buttons at the bottom of the screen to rate the measure.
  • Click the “Save” button to submit your rating.
  • Go to the Measures tab.
  • Click on the name of the measure you would like to comment on.
  • Click the “Add Comment” button found at the bottom right of the page.
  • Enter a title for your comment in the first text box.
  • Enter your comment into the second text box.
  • Click “Save” to submit your comment.
  • Go to the Measures tab and click on the name of the measure you would like to review.
  • When the measure detail screen appears, click “History.” This will allow you to view the history of all changes that have been made, as well as the user ID of the individual who made the changes.
  • Go to the “Action” column in the “Measure History” table and click the “View” link to see previous versions of the measure.

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1.How can I find measures related to a particular construct?
From the Constructs tab:
  • Click on the name of a specific construct. A list of all the measures associated with that construct in the database will appear at the bottom of the page.
  • Click on the name of a particular measure to link to that measure’s details page.
From the Measures tab:
  • Click on the construct associated with a particular measure. You will be sent to that construct’s details page, which includes a list of all measures associated with that construct at the bottom of the page.

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The My GEM tab allows you to:
  • Manage subscriptions;
  • Change your password; and
  • Update your user profile.
  • The GEM system allows you to subscribe to email updates about specific constructs, measures, and general news updates from GEM.
  • Subscriptions can be initiated on the details page for constructs or measures.
  • To unsubscribe, un-check the box on a details page, or from the “My GEM” tab.

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To add a dataset, you will need to navigate through multiple pages. The only required information to submit the dataset is the name of the dataset, organizational home of the data, and contact information for the holder of the data.
  • Go to the Dataset tab
  • Click the “Add New Dataset” button near the top left of the page.
  • Click the “Save and Continue” button at the bottom of each page, and use the tabs within the “Dataset” box to go to the next page.
    • Dataset Name – The title of the dataset.
    • Data Collection Mode(s) – A specific description of the administration method used to collect the data in the dataset.
    • Population – Types of subjects included in the dataset.
    • Collection period
      • Collection Period Start – The date data collection began.
      • Collection Period End – The date data collection ended.
    • Number of Observations – Number of analysis units contained in the dataset.
    • Availability – The level of availability of the dataset.
    • Data Dictionary – Link to the data dictionary.
    • Keywords – Words or phrases that will assist with the search for a construct, measure, or dataset.
    • Description – Text description of important information concerning the dataset (e.g., purpose, contents, funding).
    • Organizational Home – Institutional owner or holder of the dataset and all associated documentation.
    • Contact
      • Contact First Name – The first name of the contact person for the dataset.
      • Contact Last Name – The surname of the contact person for the dataset.
      • Contact Degree – The highest degree awarded to the contact person.
      • Contact Affiliation – The organization of the contact person for the dataset.
      • Contact Address line 1 – The first part of the business address of the contact person for the dataset.
      • Contact Address line 2 – The second part of the business address of the contact person for the dataset.
      • Contact City – The city in which the contact person for the dataset works.
      • Contact Country – The country in which the contact person for the dataset works.
      • Contact State – The state in which contact person for the dataset works.
      • Contact Zip – The zip code in which the contact person for the dataset works.
      • Contact Phone – The phone number of the contact person for the dataset.
      • Contact E-mail – The e-mail address of the contact person for the dataset.
    • GEM Measure(s) Used – List of measures documented in GEM included in the dataset.
    • GEM Construct(s) Referenced – List of constructs with associated GEM measures in the dataset.
    • References/Links – Selected publications concerning or using the dataset.
    • Grid-enabled status – Datasets are considered grid-enabled when the documentation and programming related to the data have addressed the compatibility guidelines established for caBIG so that that dataset will be syntactically and semantically interoperable with other data presented via caBIG data services. These compatibility guidelines include development of a UML (unified modeling language) model that describes the relationships between the common data elements in a domain and curation of the model to ensure that shared vocabularies and standard values and formats have been used to define how data are collected.
    • caGrid URL – Link to caGrid location of grid-enabled dataset.
    • Preview CQL Statement – This statement, written in caGrid Query Language (CQL), queries the caBIG data service where the dataset of interest is located and returns a brief preview of the data.
    • Data usage agreement and security documents – These documents facilitate appropriate data sharing between and among organizations by addressing legal, regulatory, policy, proprietary, and contractual barriers to data exchange.
    • Data model URL – World Wide Web location of the UML model for the dataset. This will typically be stored at gforge.nci.nih.gov.
  • Click “Review and Submit” to review the information you entered, or “Back” to make changes in the information you entered.
  • Click “Submit” to make the dataset publicly available.
  • No. If you would like to finish entering the dataset information at a later time, click “Save.” The only information required to save a dataset is “Dataset Name.”
  • When you return to the site:
    • Search or browse for the dataset in the Datasets tab.
    • Click the dataset name.
    • Click “Edit” to finish entering information.
    • NOTE: The dataset will not be visible to others, or appear on the list of datasets until a user submits it.
Only the individual who inputted a dataset can edit it.

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  • Workspaces are user-generated spaces found on the GEM website where researchers can converse and collaborate on a specific topic/area of research.
  • Workspaces can be used to facilitate “GEM Campaigns”, initiatives with the goal of driving consensus on measures for a particular topic.

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  • Go to the Search box at the top right of the page.
  • Input the name of a measure, construct or dataset, OR input any keywords that could be associated with a measure, construct, or dataset.
  • You can use the drop down menu at the bottom of the search engine to specify whether you are searching for a measure or construct.
  • Hit the “Search” button.
  • A list of clickable search results will appear.
  • Click on the Constructs or Measures tab to see a full table listing of Constructs or Measures
  • Click on the table headers to sort the table by that category (e.g., “Content Area”, “Definition”).
  • Click on the Measures tab to show a full table listing of Measures.
  • Click the “Quick Filter” button near the top right of the page.
  • Input the desired sorting criteria using the listed categories.
  • Click the “Submit” button.

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